I have the word “fight” tattooed on my left forearm.
I got this tattoo in early 2009, not knowing how much I would still need it 16 years later. It’s a reminder, on the wrist I used to cut, to keep getting up and trying again.
On that same wrist, still visible, is the scar from the first time I hurt myself on purpose, 30 years ago. That is not the only scar. There are many scars. But there is also a reminder to not let the darkness win.
I’ve had almost daily migraines since my brain injury four years ago, but they’re getting worse now. Most days, by the end of the evening, it hurts to even have my eyes open, or to be in anything but very dim light. Sound bothers me. Movement bothers me. My brain doesn’t work right, and I get severe nausea some days.
I am always exhausted. I take hot baths in the dark.
I will be 44 in April. I don’t want to live the next 40 years of my life this way.
I have tried new, just-approved medications. I have taken the tried-and-true migraine meds. I’ve swallowed thousands of pills and given myself injections. I’ve gotten Botox. Nothing works. Opiates help but I’m only given a limited number of those, and some days they don’t even seem to make a dent.
When I tell you that my pain gets up to a 5 or 6 out of 10 almost every, you might think I’m telling you that it isn’t that bad. But I’ve had multiple kidney stones, one of which had to be removed surgically. I’ve broken my clavicle on three occasions. I’ve had multiple toothaches at the same time. All of those hurt a lot, but none are a 10 on my pain scale. 10 was when I had an abscess in my face. 10 was screaming “what kind of fucking hospital is this?” when I had been given the maximum dose of intravenous Dilaudid and I was still in agony.
Pain that hits a 5 or 6 almost every day is enough to seriously impact my life. It’s enough to make me flirt with the idea of razor blades and high bridges.
I have good days, when the painkillers work and I manage to laugh and enjoy myself. But I have bad days when I feel truly hopeless. I keep picking myself up and continuing to fight, but it is getting harder and harder to do. Four years now of accepting my diminished potential, of letting go of dreams, of trying to dig my way forward and transcend, somehow, the absolute shitshow this brain injury has brought into my life.
I am stuck in a place of making do and settling for less than I hoped for. All because someone else decided he knew better than I did about how I tolerate a certain kind of anesthesia, and I reacted the exact way I’d told him I would– which is to say, Versed makes me try to fight off whoever is trying to operate on me. Rather than stopping the procedure, he or someone in his office slammed my head into something with such force that I am still affected every single day by the injuries they caused. And I will never know exactly how it happened. I just woke up with a bump on my head and a moderate amount of brain damage.
There’s nothing anyone can do, it seems. They can’t make the headaches stop. My therapist can’t help me process this so that it’s somehow okay. It’s just awful. It continues to be awful. It has been awful for almost four years now.
I have lost so much, held on to what I could, and only managed to gain a little through sheer force of will. I don’t want this to be my new normal. I don’t want this at all.
We are raised to believe that if we’re good people, if we follow the important rules and try to be kind, if we persevere and strive, we can arrive at a place of contentment and happiness. I know now that it simply isn’t true. You can get utterly fucked by the fates in an instant, and nothing will feel safe, stable, or whole ever again.
I don’t trust contentment or happiness. I don’t trust stability or safety. And I wish beyond my ability to communicate that I had never gotten this wise. I’d rather be ignorant of all of this. I’d rather be stupid, safe, and happy.
I used to think that an unexamined life isn’t worth living. Now there are things I desperately wish I had never had to see.
All of that being said, I had a very good day on Sunday. I had a very good session with my therapist on Monday. I am continuing to fight. I am looking forward to my next Bacon Blue burger at our favorite bar. I might visit San Francisco in March, and I’m tracking the prices of airfare to Boston, Vermont, and San Diego.
On my right forearm, I have a tattoo of a human heart, and banners over the heart bear two statements in Latin: cogito ergo doleo and dum spiro spero.
Two years, eight months, and four days ago, I went to the oral surgeon. They put me under. I woke up. I was terrified. I was crying. I asked, did something go wrong? They said nothing happened. One of the assistants seemed angry with me. I didn’t know why. I couldn’t stop crying. My friend Jordan was my ride. He was waiting in the parking lot. They wanted to go get him. I wouldn’t let them. I wanted to calm down first. I didn’t want him to see me like that. I couldn’t stop crying. I didn’t know why I couldn’t stop crying. I didn’t know why I was terrified. No one would tell me anything. Eventually I calmed down a bit. I was still pretty out of it. I don’t know how long it took, but if I had to guess, I’d say maybe twenty minutes. Jordan came in. They walked me to the car. Jordan drove me home. Jordan got my husband and they put me to bed. I slept and slept and slept. I was a mess. I had gauze in my mouth, and stitches, and I just wanted to rest.
That was on March 15th, 2021, which was a Monday. I think I worked that Tuesday. I can’t imagine how I worked Tuesday. Force of habit, I guess. I know I can’t have been feeling 100%. I haven’t felt 100% since before March 15th, 2021.
Tuesday night was when we found the bruises
These were obviously fingerprints pressed into my arm.
We were laying in bed. And The Husband-Bot said Oh My God Your Arm. And I was like What Are You Talking About. And he said “Look.” and I Looked. And I was like, T, those are fingerprints. And he said “Yes, they are.” And we marveled.
I had a knot on the back of my head. I had bruising under my jaw. It hurt to swallow. It hurt to put even featherweight pressure under my chin. Someone had obviously restrained me with great force. Multiple someones. Someone had obviously slammed me back in the chair. I had been injured. But I didn’t know yet how injured I was.
March 15th, I went to the oral surgeon.
March 16th, we found the bruises.
March 17th, I emailed the oral surgeon to ask what the hell had happened.
And on March 18th, I figured out that there was something really wrong with me.
That’s when I knew I had a concussion.
Today is November 19th 2023. It has been two years, eight months, and four days since my most recent traumatic brain injury, and I have been well and truly fucked by it.
I saw my amazing doctor on March 23rd. She verified that I had a concussion, which at that point was a mere formality. By this point I had
been bucked from a horse in 1985
attempted (and very much failed) to pop a wheelie in 1987
fainted and smacked my head against a wall in 1995
gotten t-boned by a truck in 2011
I knew what a fucking concussion felt like.
On April 8th I facilitated a staff meeting but then started hallucinating like I’d eaten some excellent shrooms. It was then that I decided to take the rest of the day off and not to facilitate meetings for awhile.
Work was very understanding, if by understanding we mean that they said that they understood while actually making everything much harder and tilting their head like confused dogs when confronted with the fact that, yes, I still had a TBI and, yes, that actually did change some things and no, that wasn’t something I could just kinda, y’know, opt out of on weekdays or anything…
(fuck you kristin)
(I have a new job now)
The first three months after my injury I tried to behave as normal. I tried not to miss work, not to make excuses, not to slow down or change my routine in any way, and it almost killed me. I was getting worse instead of better. I couldn’t really sleep– it’s a sick irony of TBIs and that they can cause insomnia when what you need more than anything else is rest. So I was working eight hour days and sleeping about 4.5 hours a night and experiencing ungodly migraines, dizziness, ataxia, paraphasia, hallucinations, issues with word-finding, short-term memory loss, and a host of other issues that made me feel like I was going senile at 40. I was worried that I was losing myself. In June I broke down and ended up taking three weeks of leave out of desperation and sleeping as much as I could.
Part of the reason it felt imperative to take leave right then was that things had come to a head with my mother about her continuing pressure on me to have a relationship with my brother which I did not (and do not) want to do. I had to really break that down with her and put her on a time out, and this was very difficult for me emotionally. I wrote a rather lengthy blog post about this at the time if you feel like hunting it down. It’s not hard to find.
In September I received a two day unpaid suspension for goofing around on my work computer on the clock. When I pled that a lot of the things they cited were work-related, that in many cases I was trying to stay awake and alert when I ran out of tasks, and that my judgement and awareness of time were affected by my traumatic brain injury it fell on deaf ears. This is when I started to seriously believe that management was trying to get rid of me.
So at that point I was six months into my TBI adventure!
Throughout all of that I was trying very hard to be upbeat! Hopeful! To maintain my belief that healing was just! around! the corner!
Spoiler: no.
I got a new therapist around that time who was awesome! Her name was Jacey! And she was very good at helping me see the bright side of things. She felt like a friend. Our weekly sessions really helped keep me going. So that was great. My work situation still sucked ass, but at least I had someone to talk to about it.
And now I’m sitting here trying to think of other things that were happening in autumn 2021 and I can’t think of a fucking thing… I think I was just in survival mode, you know? Waiting for the good things I was sure were just right around the corner. I know I wrote a Christmas letter that year?
So I guess we can pick back up in Spring 2022.
MARCH: A year after my injury. I threaten to sue oral surgeon. He sends money. It isn’t a ton of money, but it’s all I’m going to get. I had to sign a NDA. We start shopping for a house in earnest. [We did not have “buy a house” money. We have “Oregon has great first time home-buying programs and we had hubris and now have SO MUCH DEBT OH MY GOD WHY DID WE DO THIS” money.] I hired the first realtors I met up with because I got a good feeling. They were a team who I’ll call Carrie and Fiona. I only meet Carrie the once, Fiona was our point of contact from then on.
APRIL: Jacey the therapist decides to leave the practice she’s at but super super pinkie swears she’ll totally for sure going to start up somewhere else to continue the super important work we were doing. I never see her again. This devastates me. I go into a terrible depression. The depression goes way past April. I am still in the depression. I do have a therapist currently, though.
MAY: HOUSE HUNT! We find a great-looking house and are about to bid on it when we discover that it was pretty much the site of a gun battle the year before and decide “nope.” We decide to confine our search to a certain part of town where we really want to live, which limits our options but makes us focus more.
JUNE/JULY: More house hunting. I have become obsessed. Travis keeps telling me to chill. I MUST HAVE A REWARD FOR ALL THE BULLSHIT I AM GOING THROUGH. ALL WORK AND NO PLAY MAKES KATE A DULL PSYCHOTIC MESS. We find a house which is MEH but for some reason Carrie the realtor (who T has never even MET) really wants us to buy it. It is dark and dank and a homeless dude lives in the shed and it isn’t at all what we want and there is no driveway and no back yard (and an awesome back yard is on our MUSTS list) but for some reason Carrie is like THIS IS YOUR HOME BUY IT. We do not buy it. There’s this other house that we wanted to look at but the residents got Covid so we couldn’t. But then a couple weeks pass and we’re like what about that one…….
So it’s July 27th and we go and we look at it and T is like DO NOT GET HOPES UP DO NOT FALL IN LOVE and we drag our friend Dan along like we usually do and I’m just walking through this house like uh-huh…. uh-huh……. hmmmm……. uh-huh….. and then I go in the back yard and I sit in this Adirondack chair and Dan walks out and we make eye contact and we just, like, nod.
So we bid. And they came back a little higher. And we said Mmhmm okay. And then and then and then we have a house. We moved in September 21st, 2022.
Dan does not live here. We just rely on him to be rational and see things we don’t. It’s good to have a friend like that. I fall in love with everything. T is a ball of cynical anxiety. Dan is level-headed.
So I fucking love our house. Original 1958 oak floors. Not pristine, but solid shape. Central heating, no AC but we can dream. It’s in great shape for its age, good foundation, new roof, new huge deck. It’s charming as hell. We love our neighborhood. Quiet. Great Mexican restaurant a few blocks away. Friendly people. It’s just… nice. We’re still learning how to be homeowners. But it’s great.
But there’s nothing, nothing, nothing that can compensate for the TBI. $10k wasn’t enough. $10mil wouldn’t be enough. Nothing would be enough. Nothing.
We’ve been in the house for 14 months. We wouldn’t have the house without the catastrophic head bonk. And I think I was so obsessed with finding a house because I thought it would make up for the head bonk. And it doesn’t. It couldn’t. It was stupid to think that it could. It’s a great house. But nothing could.
I am mostly “back.”
I am doing way better than I was a year ago. I am doing immeasurably better than I was two years ago.
But I will never be like I was before I was injured. Looking at me you might not know that. But I know it. Every day I know it. I feel it. And it bloody kills me.
I spent the first, like, 29 years of my life in the pits of despair, man. Agony. I had good days and bad days. I had good years and bad years. And when I was 29 I had to move out of my rental house in Portland and I had nowhere to go so I went to my mom’s house in California because I was out of fucking options. And I got a job and I got a nice boyfriend and everything was temporary but it was sunny and it was tolerable and I was happy for just a little while, and I knew then that it was possible to be happy.
And everything went to shit again, and everything stayed shit for quite some time, but I knew it was possible to be happy so I fought like hell and I eventually got to a good place, a stable place, what felt like a really sustainable place, and by the time I was 39 I was married and I was on the right pills and I was employed and I was fucking healthy and everything was coming up Milhouse.
I guess I still believed in the American dream, that with enough sweat, luck, and bootstrappin’, you can do anything, you can be happy. You can succeed. I believed that I was away from the yawning chasm I’d camped next to for most of my life and I’d never get that close to it again. Suicidal? Not me! Not anymore, not ever again.
I thought I’d fought hard, and I’d won. I thought I could stop fighting.
My husband and I toured a house yesterday. Immediately when we got inside, I smelled mildew and fresh paint. That was not a good sign. We walked through a few times and told the realtor we’d think about it. On the way back home, we impulsively stopped at a Japanese restaurant and got a light lunch. We decided at that table that we would not buy the house (which did have some lovely features, but several more ticks in the “no” column than in the “yes.”)
And while we were sitting there, me noshing on edamame and sipping water, I told T that I think I’m spiraling a little bit. I’m impulsive. I don’t have a lot of control over my emotions, and I hate it. I have worked very hard to have control over myself, but lately I am snappish, mercurial, sullen. I speak without thinking and am overly friendly with people who (it seems to me) give me weird looks and then try to go back to what they were doing. I ache for connection but shrink away from it, full of doubt.
My normally pretty-damned-good self-esteem is faltering. I don’t think I’m a worthless pile of crap or anything, but I do have my moments of intense self-doubt and calling myself weird, stupid, or crazy, even if it’s only in my head. I can usually manage to push those feelings aside and move onto something else. But yesterday, I felt a sort of melancholy that I haven’t felt in quite awhile– this feeling that the ground was falling away from underneath me and I was in freefall toward… I don’t know. Some sort of emotional doom.
I know myself pretty well, so when I was telling T about all of this I said “I’ll probably feel better tomorrow, because I usually do feel better after a good night’s sleep.” And I was right, I do feel better today. Not all the way better, but no longer like the abyss is looming.
The past 14 months have been one of the most difficult periods of my whole life– and if you know me, you know that my life has had a lot of difficult periods. Already plagued with health issues, I did not need the addition of a traumatic brain injury. But that’s what I got, and I am doing what I can to make the best of it. In a life that’s probably about half over, I’ve learned that often that’s the best thing we can do.
I’m still employed and getting straight A’s in school. But it’s dragging. I’m dragging. My verve and enthusiasm that I worked so hard to cultivate are failing me right now. When we got married, T said he wanted to buy a house within five years, so I fixed my abysmal credit score, paid off debts, and started trying to save. When I enrolled in school, I decided I was going to kick ass and I have. I have done so much with hope and willpower, but now there are things in my life I can’t just power through. There are things, like buying a house, that are in many ways out of my control. Knowing that my goals are years away from being achieved is really taking a toll on my psyche. And I just don’t have the energy to go fast fast fast all the time like I always have. I get tired so easily. I can’t coast by with intelligence and willpower, I have to utilize that skill that I’m still trying to build and has never come naturally to me: patience. I hate patience.
Things have been better, and I’ve gotten stronger. But eventually strength isn’t enough. Smarts aren’t enough. Humor and pretty green eyes, unfortunately, don’t mean much in an insane housing market. They won’t give me a Masters degree for being cute. Work doesn’t accept “well, I’m trying” as a substitute for getting stuff done or answering the phone. And there are some days when the effort of just getting through is so exhausting that I sort of cease to function by 5pm. For awhile, grit, determination, and my eternal/infernal optimism were carrying me. But those things aren’t inexhaustible. I am so, so tired.
I have this image pinned to my cubicle wall at work. It amused me but now I’m seeing through the gaslighting! What’s step 2?
The despair I felt yesterday was something I used to feel much of the time. And I kind of marveled at it, like how did I live this way for so long? Because for a most of my life I saw myself standing next to a vast canyon, feeling the wind try to push me over the edge. Feeling parts of my brain telling me to just jump and get it over with. And for the past few years, even after my injury, I sensed that the cliff was still there, but that I was no longer standing at the edge. I’d moved into a clearing several dozen paces away, and I could not gaze into the bottom any longer, contemplating, wondering, tempted.
Yesterday I was closer to the edge again. The wind was whipping. The canyon loomed. And as I always have, I turned my back away. I looked toward the clearing. I kept my eyes on the hope, the potential, life. Because some days, that really is all you can do.
In 2016, I got a temp job working for the Bureau of Labor and Industries. I worked front desk there for about six months. During my time there, I met Amanda, who first got my attention because she wore amazing lipstick. I decided I would be her friend. We both moved on from BOLI pretty quickly, and once we were both out, I invited her to lunch.
Because I’ve had some bad luck with friends in the past, I made it a point not to put much pressure on the relationship. We hung out about every six months; we would shop at the MAC counter and/or go to lunch. It worked. It was simple. I’d made a friend. She came to my parties and bought us towels for our housewarming a couple years back.
Last year, I got married. My husband and I had a simple, Dude-ist ceremony officiated by our friend, Jordan. We needed witnesses, so I asked Amanda. She came with her husband. And she decided her gift to me would be personal training sessions, because that’s what she does now.
We met for sessions a few times, and then Covid happened. We resumed in the summer, masked and distanced. When cases started going up again, we put the sessions on hold. And then we started meeting about once every week or so on my lunch breaks downtown, just to chat and get some (masked, distanced) social time.
Around Christmas, Amanda stopped texting me back as often. I noticed. I brought it up to my husband, and he said “Maybe she’s busy. Don’t think too much of it.” So I tried not to.
But in the past couple of months, I couldn’t shake the feeling. She’d respond to messages eventually, but she wasn’t volunteering anything. She wasn’t asking to meet up, and she wasn’t initiating conversations. Last week I was pretty worried about it, and so My husband said I should message her. I did. She responded. It seemed fine.
But I still couldn’t shake the feeling. So this morning I sent what was intended to be a lighthearted message, and I got the response you see above.
When I was in California from 2010-2012, I had two parties at my Mom’s, where I was living. Both of them were very well-attended. At the second one, a few people came up to me to tell me that I had awesome friends and sure knew how to throw a party. There are people from that time whom I still talk to, which is nice. But none of them live close by. And I’ve fallen out of touch with most of them. I’ve been written off by a few of them, too.
The past eight years have been awful for friendships. In March, 2013, my sister-in-law (who was also one of my best friends,) cut me off very suddenly and said a bunch of terrible things to me while doing it. We were living together at the time, so I moved out as quickly as I could. My brother also stopped talking to me for awhile, but I’d gotten pretty used to that by that point.
In May 2013, I moved in with my friend Dee, which was pretty much a disaster. I couldn’t keep a job, and I had trouble paying rent. In August of 2013, one of her friends said he’d replace my brakes and I’d only have to pay for the parts. I drove over to where he lived, and as soon as he got the wheels off my car, he started trying to extort more money from me. On the way to the ATM so I could take out cash to pay for the new brakes, he told me that someone had once refused to pay him for his work, and he’d cut that person’s brake line. I was freaked out. I gave him another $40, which I had to call my mother to have her send to me. He wanted an extra $200 or so. Over the next few weeks, he kept trying to intimidate me into giving him more money. I refused. And on Friday, September 13th, my brakes failed on the highway at 50mph, and I steered my car into a ditch so as not to hit anyone else. I’m pretty sure that this friend-of-a-friend tried to murder me. I was lucky that my only injuries were from trying to get out of the car, which had flipped onto the driver’s side. Love that Volvo engineering.
(Dee treated me like I was crazy for thinking her friend had tried to kill me, even when I told her he’d bragged about doing it before. When I confronted him about it a few years later, right in front of Dee, he said “I don’t want to talk about that.” Apparently that didn’t make much of an impression on her, either.)
Eleven days after the car accident, on September 24th, I lost my job, and on the 25th I checked myself into a psych facility because all I wanted to do was die. I spent the next few months in a hell of unemployment and (catastrophically) failed medications.
In January, 2014, Dee kicked me out. Someone else took me in. That was a disaster, too.
I hooked up with my husband in July, 2014, and we’ve pretty much lived together ever since. My housing is finally stable, but I haven’t really succeeded in making new friends. Some of his friends like me. But if we got a divorce, he’d get them in the split.
Amanda was the first person in a long time I’d made friends with all on my own.
My heart is broken. I’ve spent the past hour or so googling “why don’t people like me” and “how to make friends.” It’s pathetic.
I know that there are parts of me that could use a bit of a polish. I tend to talk too much when I’m nervous, and I’m almost always nervous. When people tell stories I have a tendency to say ME TOO and then elaborate, and some people feel like I’m one-upping or talking over them. I’m working on that. My humor can be abrasive, but I’ve toned it way back. Former coworkers who I considered friends dropped me without telling me why. I feel unlovable. I don’t trust anyone not to turn their back on me or ghost me, because it’s happened so many times now.
Last week I told my husband that there’s a voice in my head that says “nobody likes you, and they’re right.”
Went out to my local karaoke bar on Friday night. Someone I used to date (long, long ago) was there, and I ran into two other people I’d trysted with previously.
It’s a small town, for such a big city.
My tendency to rush headlong into things means I have a lot of “exes” in the greater Portland area, throughout California, and all over the world. I get around, or did once. Both geographically and in the bedroom.
Only a few of these people were ever in a position to break my heart, but several of them hurt me. Most of them? I rush headlong, I get hurt. It’s sort of my thing.
Carrie Fisher once said “Resentment is like drinking poison and waiting for the other person to die.” Princess Leia is wise.
I don’t know how to feel truly alive if I’m not wrapped up in someone. Whether I’m chasing after someone or trying to keep them around, other people have always been my favorite way to get high. Maybe the reason I never got addicted to anything more intoxicating than cigarettes is that there’s no drug that can get me as high or as low as infatuation can.
I have discarded people, rather coldly, because they didn’t match up to my idealized picture of them. Some people I didn’t cut off soon enough, hoping they’d change. Others, I walked away from and tried not to look back. But I look back, harshly or longingly. Wallowing is also sort of my thing.
Lately I’m having all these revelations and realizations and re-realizations, and it’s exhausting. What do I do with all this hard-won knowledge? I can try to apologize to the people I’ve hurt, forgive the ones who’ve hurt me, and do better in the future. But my life is sort of a mess, and I’m lonely.
I picked up two women from the grocery store tonight and drove them to a party at their friends’ house. Only when we arrived did I realize that I kind of knew the people there, fellow cabbies, and I was invited to stay. I hung out for three hours in the middle of my shift, practicing being social. But I’m really nervous around people, knowing how I can be. I say strange things. Tonight I was mostly quiet because I know that I have a tendency to act crazy just so I won’t be invisible. I think too much. That is definitely my thing.
I feel a great imperative to be a better person than I was. I’m trying to figure out how. Addicts make amends and stop using their substance of choice. But how do you give up being mentally ill? I don’t know how to put down that particular bottle. And how do you ease your addiction to other humans without becoming a recluse?
A couple times in the last week-or-so, a person has said said “I’ve been reading your blog, and it sounds like you’re doing a lot better.”
Well. No.
The last six months of my life have all been after. After that point in September when I realized that it seemed like a perfectly rational thing to just kill myself. So I called my mother, and I got some help, and… nothing really changed. Things got worse, for awhile. Am I better than I was when things were worse? Certainly I feel better, most of the time, than I did at the end of December when I walked into the emergency room and told them I was thinking of killing myself, and could use some immediate assistance. I feel better than I did in early January, going back to that same hospital every day to sit in a room of strangers and try to just make it until 3:30 when I could go home and sleep or cry or whatever far away from hostile eyes.
But I haven’t really come around to the point where it doesn’t seem like a perfectly rational idea to kill myself if things don’t get drastically better soon. I said at the beginning of the year that if 2014 is as terrible as 2013 was, I don’t see the point in continuing.
It feels like a waste of resources. I am exhausted all the time. I am sick all the time, actually physically ill. The other night I vomited out the door of my cab between fares and still kept trying to work for another two hours. I know that sometimes we have to soldier on through bad days, but I have had so many bad days and so few very good ones that, in my darker moments, there just doesn’t seem to be any point. Other people have to take care of me because I can’t take care of myself. I’m awful to be around sometimes. I want it to stop.
What changed in September was that, for the first time, my suicidal thoughts weren’t out of sheer desperation. I certainly felt desperate and frantic, but there was this cool, calculated core of the thought underneath when it just made sense to give up. Not to make the pain stop, but to stop wasting time and energy trying to make this life work.
When my brother’s wife decided to shut me out last March, after we’d been best friends for almost three years, something broke in me. The way things disintegrated with my roommate D only reinforced my feelings of being unlovable and broken. I can’t hold a job. I have no energy. All my optimism comes in short-lived spurts, and that’s when I usually post to this blog. That’s the face I show. I try to insulate the people I care about from the worst of what I’m feeling.
I will whine and bitch about a stubbed toe, but I’ll bleed to death alone in the dark without making a peep, to be melodramatic about it. I hide my pain behind smaller pain. People assume that if I were really hurt, I’d say something, because when has Kate ever held back from expressing herself?
All the damned time. That’s when.
I am not in active crisis right now, at this moment. But things aren’t looking great. I have a new car and an awesome kid in my life. It’s spring, and we’re in the midst of a stretch of absolutely gorgeous days.
But it isn’t enough. None of it is enough. I feel like I’m decaying, corroding, stagnating.
I had a panic attack on the way to the grocery store today, and Jeremy had to bring me home. I am terrified of driving and constantly feel like I’m going to get into an accident, which is backed up by the fact that I got a ticket last week for making a dangerous left turn into oncoming traffic, and I was almost hit by a car. But I scream at Jeremy whenever he makes a “mistake” when he drives and constantly criticize him. So I’m terrified of being a passenger, too.
On Saturday, Jeremy and I drove out into Mt. Hood National Forest and put 190 miles on the Civic in one afternoon. It was a great day. I only screamed at him a few times for not observing proper following distance or for making lane-changes that I thought were “indecisive.” When we weren’t around other cars, I was fine. I was in two serious car accidents in less than two years, remember. And lately, more than makes sense, I’m in constant fear of getting into another which, consequently, makes me a worse driver. I hate being in cars, much of the time, and I am a cab driver.
And if someone treated me the way I treat my boyfriend, I would have left them a long time ago. I dragged him into my therapy session the other day (since he drove me there) and my shrink said that it’s not my job to tell him how to react to my outbursts. This may be true, but I still find myself horrified by them. I don’t want to be that sort of person. And I don’t know how to stop, except by stopping to be any sort of living person at all.
I need to have a good summer. I will spend it in nature as much as possible. I will try to sing more, in all seasons, because it makes me happy. And keep holding on, as hard and as long as I can.
I am not a great decorator. After Mike The Asshole told me my taste was tacky, I stopped putting things up on my walls for awhile. After we broke up, I of course plastered my walls with weird postcards and the like. But I’ve moved seven times in 3.5 years, and I seldom put anything up because it’s exhausting and I’m just gonna probably move in six months anyway.
So my current bedroom has only one thing on the walls.
It’s a letter my dad sent me years ago, when I was desperately poor and felt, well, lame. Because I needed help again and I felt like a 28-year-old shouldn’t be asking her daddy for money every month. I should have had my life together, and I didn’t. He sent a check, and included this note, and everywhere I’ve lived in the past five years, this has been on my wall.
I am, whatever our problems, and whether I want to be or not, Daddy’s Girl. I have always wanted to impress him. I tell people, “my father is brilliant, I am merely very,very bright.” My father has something like 13 patents. My father had a part on the space shuttle, although I’m not sure what. My daddy does things with lasers and tank armor and makes assloads of money and lives in a house with a glorious view of the Pacific. My father is generous and charitable and at times astonishingly kind.
Which is why this is so hard for me.
He doesn’t goddamned get it, at all.
Martha says it better than I can:
You say my time here has been some sort of joke
That I’ve been messing around
Some sort of incubating period
For when I really come around
I’m cracking up
And you have no idea
No idea how it feels to be on your own
In your own home
with the fucking phone
And the mother of gloom
In your bedroom
Standing over your head
With her hand in your head
With her hand in your head
I will not pretend
I will not put on a smile
I will not say I’m all right for you
When all I wanted was to be good
To do everything in truth
To do everything in truth
I don’t know if that conveys it to you, but it’s playing in my head on a constant loop these days.
I talked to my dad about 10 days ago. It was about an hour after my weekly therapy appointment (and two days before I cracked up and went to the hospital.) And he gave me his usual dad advice that what I probably needed was some stability, that I should get a job, that the happiest and most stable I’ve ever been was when I was working, and that my first priority should be getting back into school.
Let’s address these points, shall we?
I probably need some stability.
Well fucking DUH
I should get a job
I totally agree! That’s why I’m working on becoming a cabbie! Also, if you haven’t noticed, I’m losing my mind like right now this very moment and perhaps a desk job isn’t going to magically fix things.
The happiest and most stable I’ve ever been was when I was working
Y’know, I’d noticed that too! And I looked for work for months, but I’ve been sort of bedridden with this whole “I want to die I want to die I want to die” thing I’ve been indulging in lately, so it’s made it hard to keep keepin’ on. I applied for everything I could until I could no longer work anyway because the depression and anxiety were close to killing me.
You should go back to school (even though I’m unwilling to adequately support you while you do it.)
I dropped out of school when I was 28 because of what I now know was a raging case of bipolar disorder. I could not sit still in a classroom. I spent my days at home hating everything and my nights at bars with pretty boys because they were the only thing that reliably made me even temporarily less horrid. You won’t help me pay for it, and I’m ineligible for more loans.
And I have some points of my own!
If I went back to school now, the same goddamned thing would happen. I would crash and burn. I know it. This is not a guess, this is the truth.
The last job I had, I had to quit after five hours because I got a panic attack so bad that it gave me diarrhea.
My top priority right now is to get healthy.
My top priority right now should be to get healthy.
I cannot do anything useful until I am healthy.
I have lost 15 lbs in the past MONTH. That’s terrifying (although I did have it to spare.) When I try to eat normal food, I shit or vomit. I’m basically on a liquid diet most days, and that’s more expensive than you’d think. I’m going through withdrawal from Effexor, which means that I burst into tears sometimes and my head constantly feels like it’s receiving electric shocks. All I can think about all day is going to bed, but when bedtime rolls around, I’m wired and don’t get to sleep until 2am when I meant to be in bed at 9pm and have to be awake at 8am. I have not once been on time to the hospital where I spent 20-30 hours a week trying to get better. Getting better is exhausting. Lots of anger, lots of crying.
This is hell. This is hell. This is hell.
Honestly, I’m feeling hopeful and better and therapy is working and I think lithium might fix some of this so I go to my stupid groups and I take my stupid pills and I deal with the BZZZZZZZZZZT in my brain and I get by on not-enough sleep and I try my hardest not to buy that cute vintage jacket or fuck that cute boy because I don’t want my mania to rule my life.
And I unreservedly say FUCK YOU to anyone who has never been through this but thinks they know what’s best for me.
This is HELL. And I am fighting, and I am BRAVE, and I am STRONG and I am going to fucking BEAT THIS even if you don’t believe in me. Even if you think I’m not trying hard enough. All I do is try. I fight and fight and fight and this is hell hell hell.
I went to karaoke tonight, for the first time in what might be months. I went to this silly hipster place because they have songs that no one else does, and I wanted to sing Madness. Which I did. So I was at this karaoke joint for about three and a half hours, by myself. Drinking (non-alcoholic) Ginger Beer, which is goddamned excellent.
Last weekend I felt like I was melting, becoming myself again. Now I feel numb. I fuckin’ rocked the three songs I did tonight, and I spoke to strangers, but I realized that I didn’t want to be around or talk to anyone I know. I don’t trust anyone. They might let me down. Most of them have. Caring is too painful. A switch has flipped and I just can’t bother to give a shit.
Maybe I’ll feel better tomorrow. I’ve certainly been sleeping a lot, and when I’m awake, I hardly talk to anyone. I’ve been reading the Harry Potter series. I’m partly into book six, and I think I only started on them last Saturday.
People kept saying I seemed manic. Now, when no one is looking, my affect is flat. When I talk to people, what I say is strange. I put on a happy face, but it aches. I can’t do it for long. I’d rather be alone.
I can’t afford to hope anymore. It’s all I can do to go through the motions. Christmas is in three days. I don’t have plans. I have nowhere to go. I’ll probably sleep all day so I don’t have to think about it.
I go through the motions. I eat because I have to, I sleep more than I have to, I have realistic dreams where something makes me angry or sad, and I wake up still angry and sad.
I had a dream a few months ago that I was dying, and someone from my past came to say goodbye. And I felt such peace, and I woke up sad. Because I’m not going to float away on a cloud of morphine and forgiveness. I have to keep on keepin’ on. So I do. And soon I’ll melt again, and feel things again. Maybe right now I should be grateful just not to be in terrible pain.
I don’t like it when people try to get me to have what they call “perspective,” but I am a firm believer in context. I’m not interested in being beaten about the head with stories that are supposed to remind me that there are people so much worse off than I am. I know about the Holocaust, and all the other mass-killings that society doesn’t deem worthy of capital-letter infamy. I know about serial killers, abused children, the poor. I know, I know, I know.
But context is a different thing. As my friend J says, your own worst day is your worst day, period. And he’s a one-armed, eye-patched survivor or a horrific car accident, so I think his words have some worth. Nando Parrado, survivor of the Andes Flight Disaster says that everyone has their own Andes. It’s all about the context of your life and how much you can bear. We learn that we can survive horrible things because we survive horrible things. But some people die from horrible things, and some people simply never get better.
So comparing my worst day to your worst day doesn’t really amount to much. And frankly, it’s bullshit to try to put someone else’s pain on some arbitrary scale and say, all right, you get to suffer this much and you get to grieve this much and then you’d better get over yourself and move on because, frankly, we’re tired of all this boo-hooing and don’t you know that so many people have it so much worse?
In September, I spent five days in a mental health center because I was having suicidal thoughts. While I was there, I was diagnosed with something called Borderline Personality Disorder. I didn’t find out about the diagnosis for over a month and a half because no one mentioned it, and some people thought I already knew. I was shocked when I was told that I’d graduated to the ranks of the truly mentally ill (depression is so common as to be passe, after all,) and especially because everything I knew about BPD was gleaned from an outdated book on mental illnesses that I read in my high school library back in 1995. Apparently, in the 18 years since I first heard about this disorder, the prognosis has become much less bleak. But all I knew when I got my diagnosis was that people with this condition were considered untreatable. It felt like a life sentence– I will never be sane, I will never feel whole, I will never be loved or be able to love anyone else in a healthy way.
So as soon as I got home, I did some research to try to figure out how I was going to navigate my life with this terrible illness, and that’s when I learned that psychiatry has taken a few leaps since 1980, when this disorder was first brought into the public eye, and even since the 1990s when BPD really was kind of a horrible thing to be labeled with. There’s treatment, now, and people do improve. There’s a lot of work to be done, but there are many reasons to believe that I’ll feel better soon.
And GEE WHIZ, does this diagnosis fit. According to the internetz, these are the nine hallmarks of this disorder, and if you’ve got five or more, chances are good that you’ve got BPD*.
[*Of course, it’s possible to have one or several (or all) of these symptoms and not have Borderline Personality Disorder. Everyone can identify with some features of mental illness, to some degree, some of the time. These are human issues, and most are common enough. It’s when these symptoms disrupt your attempts to live a healthy, successful life that they’re considered pathological.]
Frantic efforts to avoid real or imagined abandonment
A pattern of unstable and intense interpersonal relationships characterized by alternating between extremes of idealization and devaluation
Identity disturbance, such as a significant and persistent unstable self-image or sense of self
Impulsivity in at least two areas that are potentially self-damaging (e.g., spending, sex, substance abuse, reckless driving, binge eating)
Recurrent suicidal behavior, gestures, or threats, or self-mutilating behavior
Emotional instability due to significant reactivity of mood (e.g., intense episodic dysphoria, irritability, or anxiety usually lasting a few hours and only rarely more than a few days)
Chronic feelings of emptiness
Inappropriate, intense anger or difficulty controlling anger (e.g., frequent displays of temper, constant anger, recurrent physical fights)
Transient, stress-related paranoid thoughts or severe dissociative symptoms
All my impulsive decisions, my wanderlust, my inability to let anyone get too close while paradoxically craving acceptance and unconditional love, my intense emotions that no one understands because everyone else is cold and unfeeling and detached — all of that suddenly makes sense. I’m not shiny and special, I’m mentally ill!
Well, my shrink says it’s possible to be both. That my intensity is both a gift and a curse, and that my job now is to figure out how to still be emotional and vibrant and intense, but not get torn to shreds by my own transient emotions.
Being crazy is hard work, ya’ll.
The past year has been excruciating. In fact, the past three and a half years have been such a mish-mash of BEST EVER (!!!) and HOLY FUCK PLEASE STOP that it’s hard to know what to expect. I keep losing important people, not to death or distance, but because we’ve failed to meet each other’s expectations. That’s the most diplomatic way I can put it. It keeps happening. To quote noted existential poet Jewel:
Guess I’ve mistaken you for somebody else
Somebody who gave a damn, somebody more like myself
Word.
I have to move again around the end of the year because of one of those dissolving friendships. Just as I had to move in May because of a dissolving friendship. And while my friendships dissolve, so do I. I don’t understand why people keep leaving me. And it’s not all in my head, but maybe I have been unconsciously choosing the very sort of people who can’t give me what I want or need. Maybe the detachment I admire in them actually indicates a basic incompatibility in the way we relate to others. I don’t know.
But I’m proud of myself for having done so much of the work already. Even before I knew I had BPD, I’ve been a counselor to myself as part of my quest to not be a miserably destructive human being. And so I’ve been asking myself for a long time if I’m the one who’s the asshole. I’ve been good at not emailing people after midnight because usually those emails are insane. I try not to blame people, or think in black-and-white terms, and I try to forgive when I can. I certainly haven’t figured everything out, and I am far from perfect, and I still have a long way to go, but I started the work a long time ago even before I learned what I was working on.
And as much as I can, I’m trying to take these incremental steps to improve my life. I’m seeking stable housing, supportive systems, ways to lead a successful and healthy life. It’s difficult, and I’m exhausted, but I’m getting things done. I have hope. I can hold my head high as I walk away from (metaphorically) yet another burning building that I once called home.
The Aliens, by Charles Bukowski
you may not believe it but there are people who go through life with very little friction or distress. they dress well, eat well, sleep well. they are contented with their family life. they have moments of grief but all in all they are undisturbed and often feel very good. and when they die it is an easy death, usually in their sleep. you may not believe it but such people do exist. but I am not one of them. oh no, I am not one of them, I am not even near to being one of them but they are there and I am here.
What some of you know, and many of you don’t, is that I stayed in a residential crisis center for five days in late September because I was feeling suicidal.
I’d gotten into a car accident less than two weeks before, and was still suffering some pain and trauma from that. My car was disabled, though not totaled, and I had just found out that my temp job was ending earlier than expected. I held it together pretty well at work, then got home and collapsed. I called my mother, hysterical, and she told me to call 911. Instead, I called the county crisis line, and they sent me to a walk-in crisis clinic, and they, after some stupid red-tape bullshit that wasn’t their fault, sent me to what I deemed “Crazy-Person Sleepover Camp.” I wanted to leave after 24 hours because I was bored and I hated it, but one of the staff convinced me to stay, and I’m glad she did.
I didn’t get fixed, and I’m still a mess, but for a few days at the crisis center and for a few days after I got out, I felt a sense of renewed hope. I got the ball rolling on several things I need to do to make my life better, but it’s all rather slow-going, and it’s easy to lose momentum when there aren’t a lot of tangible effects from all. that. effort.
So I’ve spent a lot of the past two weeks alternating between an almost eerie calm, despair, dread, and terrible anxiety. My sleep is irregular. I want to be held but I don’t want to be touched. So it goes.
Vulnerability is nauseating. Hope feels like a cruel trick.
On most days, I can get out of bed, put on clothes, get things done. I am still capable of dressing myself, washing dishes, going to the store, eating, bathing. But I am exhausted all the time. Some days I can’t summon the nerve or energy to make an important phone call or eat anything that can’t be prepared in a microwave. Other times I’m a flurry of activity, doing all the dishes, scouring the bathroom, or mopping the kitchen floor which was so dirty, I’m nearly certain that no one had really cleaned it in the three years my roommate has lived here. I have fits of annoyance that border on rage.
When I called the crisis line, visited the crisis clinic, and checked into the crisis center, I was asked the same question over and over: Did you have a plan? And the answer to that is, no, not really. I didn’t know how I wanted to kill myself. I wasn’t that resolute, and I hadn’t made up my mind about a method. Perhaps I could have explained that I fantasize about my favorite view of Portland being the last thing I see: the view from the top deck of the Fremont Bridge. Flying, falling, flailing, toward the cold water of the Willamette. Maybe I could have told them that I own surgical scalpels, that it wouldn’t even take much force, that I know how and where to cut, that I’d take painkillers first to dull the pain and thin my blood. Instead I said that I had decided a long time ago that if I ever really wanted to die, I should just go to the hospital, since that’s probably where I’d wake up anyway. When I told these volunteers, clinicians, peer counselors, shrinks and psychiatrists that I did not have a plan for my own death, they seemed to take me less seriously. And so I finally said something along the lines of this:
I am very bright. I have been depressed for a very long time. I have fought thoughts of suicide since I was eleven. I have gotten very, very good at not killing myself. I know that I must try everything I can think of first. Because I am very smart, very pragmatic, I know a lot of ways to soothe myself. I know that the rational thing to do is to try to get help, to fight, because this life is all I have, and there have been times when I was happy, and I remember those times. So no, I did not have a plan. I came here, that was my plan. They seemed to take me more seriously after that.
And I’ve never been to Hawaii. I can’t die before I see if maybe warm water and beaches could save me. I have dreams about swimming in the ocean, somewhere where the water is warm, and I can’t die yet because I’ve never done that. I could live in a tent on the beach somewhere. If that didn’t work, maybe then I could die. Or maybe then I’d realize I’d never seen fjords, or the Aurora Borealis. And I can’t kill myself because it would destroy my mother.
I remember feeling good. I remember being happy. It wasn’t so long ago. And yes, this depression is in my head. I firmly believe that I have a chemical deficiency, faulty wiring, something that makes me more susceptible to these fits of sickness. Because that’s what depression is for me, a chronic, relapsing, recurring, dreadful disease. And it kills people all the time. And I am resigned to fight it as hard as I can.
But I am so tired. And it has gotten very bad again.
My car limps along. I try not to take it above 30mph. My “best” friend in Portland and I have differences that are, for the moment, irreconcilable, and she wants me to move out. I don’t know where I’ll go or how I’ll pay for it. I should start getting unemployment again next week, but it’s not remotely enough to live on. It seems like there are no good choices, only shitty compromises. I’m tired of being pitied, tired of asking for help. But I need help. I cannot work when I’m like this. I am registered to go back to school this winter, but it seems like it’s too soon, and so I need a plan. I don’t have one.
To be honest, it’s really goddamned hard to see the point in any of this. Why keep trying? Why keep starting over? There is no cosmic plan, no one has any answers, and all I can do is keep plodding along and hoping that my medication will stabilize me, or I’ll have some breakthrough, or at least I won’t have to worry so much for awhile.
I’ve moved several times in the last few years, and every more was less a choice than an exile. I have run out of places to run to. There is no “home” anymore that I can go back to. The pills aren’t working anymore and I don’t have money to see my psychiatrist or my psychologist. It’s all such a massive clusterfuck, and I don’t know why I try anymore.
I still try. And I will. I’ll go to bed soon, and I hope that tomorrow will be better than today. Odds are that it will be.
But I am very bright, and pragmatic, and after awhile I know that this will seem like a losing battle against the inevitable. The pain will never stop completely until I die. I can never stop fighting, no matter how tired I am, until I die. How much pain should we be expected to endure before we’re allowed to give up and give in? We’re all going to die anyway. Why keep fighting?
